Comments for usabilityworks.org http://usabilityworks.org Making next year's Human-Computer family reunion a lot less uncomfortable. Sun, 02 Jan 2011 06:58:08 +0000 hourly 1 http://wordpress.org/?v=3.1.2 Comment on Pulmonary Fibrosis by Mary http://usabilityworks.org/2005/12/08/pulmonary-fibrosis/comment-page-1/#comment-55809 Mary Sun, 02 Jan 2011 06:58:08 +0000 http://usabilityworks.org/?p=251#comment-55809 I have read all of these moving letters and will keep all of you in my prayers. I was diagnosed with idiopathic pulmonary fibrosis one year ago. I have a wonderful pulmonary specialist, he is an angel. He is thorough, honest and compassionate. At 65, I never smoked(my parents and 4 brothers have). My parents died of COPD. Now I wonder if it was really undiagnosed IPF! Never having smoked and seldom even had alcohol or any other drugs, I have been quite healthy. I do have rheumatoid arthritis, double knee replacement and a right hip replacement. I did well with all this surgery, and now a new challenge. My intention was to get on the transplant list, my weight is keeping me off. I need to loose 60 pounds. I am going to write a letter for more information. I believe if I do still want a transplant the weight should not inhibit me from receiving one. I agree that meditation, prayer, support from family and friends and others with similar experiences is so important. I think awareness and the wonderful compassionate people who took care of me in the hospital made dealing with this so much easier. Yes, we are all going to transition into eternity and part of life is accepting that. It makes it possible to be more compassionate to others who suffer. Finding serenity in this, accepting the love from others around us, and asking for strength will help us cope with this disease. Being in this place is teaching me a lot about the importance of accepting and forgiving....even forgiving myself for my choices....it is a journey. I try to keep a journal, work at forgiveness and acceptance. My prayers are that I can keep loving my kids and my sweet little grandchildren for a long time and that they will know how much I love them. This is making me so grateful for my family and friends! On a flight home from San Diego a few years ago a young man sitting next to me talked to me about life for 4 hours. At the end of our conversation, as we pulled into the airport in Chicago, he told me to pass this on: THIS TOO SHALL PASS! I believe God is blessing each one us and our families with strength to get through all of this. Beyond all this fear and unknown will be blessings of strength, joy and peace. I have read all of these moving letters and will keep all of you in my prayers.

I was diagnosed with idiopathic pulmonary fibrosis one year ago.

I have a wonderful pulmonary specialist, he is an angel. He is thorough, honest and compassionate.

At 65, I never smoked(my parents and 4 brothers have). My parents died of COPD. Now I wonder if it was really undiagnosed IPF!

Never having smoked and seldom even had alcohol or any other drugs, I have been quite healthy. I do have rheumatoid arthritis, double knee replacement and a right hip replacement. I did well with all this surgery, and now a new challenge.

My intention was to get on the transplant list, my weight is keeping me off. I need to loose 60 pounds. I am going to write a letter for more information. I believe if I do still want a transplant the weight should not inhibit me from receiving one.

I agree that meditation, prayer, support from family and friends and others with similar experiences is so important. I think awareness and the wonderful compassionate people who took care of me in the hospital made dealing with this so much easier.
Yes, we are all going to transition into eternity and part of life is accepting that. It makes it possible to be more compassionate to others who suffer. Finding serenity in this, accepting the love from others around us, and asking for strength will help us cope with this disease.

Being in this place is teaching me a lot about the importance of accepting and forgiving….even forgiving myself for my choices….it is a journey.

I try to keep a journal, work at forgiveness and acceptance.

My prayers are that I can keep loving my kids and my sweet little grandchildren for a long time and that they will know how much I love them. This is making me so grateful for my family and friends!

On a flight home from San Diego a few years ago a young man sitting next to me talked to me about life for 4 hours. At the end of our conversation, as we pulled into the airport in Chicago, he told me to pass this on:

THIS TOO SHALL PASS!

I believe God is blessing each one us and our families with strength to get through all of this. Beyond all this fear and unknown will be blessings of strength, joy and peace.

]]> Comment on Pulmonary Fibrosis by Melissa http://usabilityworks.org/2005/12/08/pulmonary-fibrosis/comment-page-1/#comment-52447 Melissa Tue, 23 Nov 2010 17:00:24 +0000 http://usabilityworks.org/?p=251#comment-52447 My dad passes away November 17, 2009, he was 73 years old. Today his brother, age 68, was just diagnosed with the disease. My dad is a twin, and his twin has so far shown no signs of this disease. My dad overcame a lot in his life, being born premature, weighing only 3 lbs. in 1937 and was told he may not survive. He did. He contracted polio at age 15 on a trip to Mexico with is father and twin brother. He was told he would never be able to walk again. He was brought wheelchairs every day and threw them out the window and told them to bring him canes, that he WAS going to walk again. And, he did. He walked until he broke his hip ten years ago and was then in a scooter, though never letting that deter him from living life. He suffered several heart attacks, open heart surgery in 2007 and even diabetes. But he never complained. He was diagnosed with pulmonary fibrosis last year, in late August. Had the biopsy on September 26 and was gone by November. He was on 100% oxygen, but because of his health and diabetes, no other drugs were given (steroids, etc.) He went fast and quickly, was on a heavy pain medication and sedated but was at home with his family and with the help of our hospice nurses. They were the kindest people and greatly surpassed any help he received in the numerous hospital visits between August and November. We were all together and sang him home, where he could breathe and walk again. He is missed every single day and his memory will live on. This disease is horrible and being told by doctors that there is "nothing we can do", is as heartbreaking as it gets. There is not a lot of information regarding this disease, or what is there is not very reassuring. Trials are few and even qualifying is difficult. My father did not qualify for anything whatsoever. Hopefully my uncle will be able to, not that it will do any good, but hopefully will give researchers more information so that one day there will be medication to help these patients. My heart goes out to anyone with this disease, as well as their families. Many prayers to you all. My dad passes away November 17, 2009, he was 73 years old. Today his brother, age 68, was just diagnosed with the disease. My dad is a twin, and his twin has so far shown no signs of this disease. My dad overcame a lot in his life, being born premature, weighing only 3 lbs. in 1937 and was told he may not survive. He did. He contracted polio at age 15 on a trip to Mexico with is father and twin brother. He was told he would never be able to walk again. He was brought wheelchairs every day and threw them out the window and told them to bring him canes, that he WAS going to walk again. And, he did. He walked until he broke his hip ten years ago and was then in a scooter, though never letting that deter him from living life. He suffered several heart attacks, open heart surgery in 2007 and even diabetes. But he never complained. He was diagnosed with pulmonary fibrosis last year, in late August. Had the biopsy on September 26 and was gone by November. He was on 100% oxygen, but because of his health and diabetes, no other drugs were given (steroids, etc.) He went fast and quickly, was on a heavy pain medication and sedated but was at home with his family and with the help of our hospice nurses. They were the kindest people and greatly surpassed any help he received in the numerous hospital visits between August and November.

We were all together and sang him home, where he could breathe and walk again. He is missed every single day and his memory will live on.

This disease is horrible and being told by doctors that there is “nothing we can do”, is as heartbreaking as it gets. There is not a lot of information regarding this disease, or what is there is not very reassuring. Trials are few and even qualifying is difficult. My father did not qualify for anything whatsoever. Hopefully my uncle will be able to, not that it will do any good, but hopefully will give researchers more information so that one day there will be medication to help these patients.

My heart goes out to anyone with this disease, as well as their families. Many prayers to you all.

]]> Comment on A Sagan by Any Other Name by Segan Marshall http://usabilityworks.org/2004/05/15/a-sagan-by-any-other-name/comment-page-1/#comment-52407 Segan Marshall Wed, 03 Nov 2010 07:33:13 +0000 http://usabilityworks.org/2004/05/a-sagan-by-any-other-name/#comment-52407 Hi, this is really cool. I spell my name slightly different (there's actually an accent over the e) but it has the same pronunciation as Sagan. There are so many variations of the name and people with them in the world. Who knew!! I am a 23 year old female from NYC and this just brought a random smile to my face. I wanted to ask where did you find the meaning for the name, this one is new, but I love it. Hi, this is really cool. I spell my name slightly different (there’s actually an accent over the e) but it has the same pronunciation as Sagan. There are so many variations of the name and people with them in the world. Who knew!!
I am a 23 year old female from NYC and this just brought a random smile to my face.
I wanted to ask where did you find the meaning for the name, this one is new, but I love it.

]]> Comment on Floyd is dead. Long live Floyd! — A Eulogy in Absentia by T.B. http://usabilityworks.org/2004/04/21/floyd-is-dead-long-live-floyd/comment-page-1/#comment-51978 T.B. Mon, 17 May 2010 18:45:20 +0000 http://usabilityworks.org/?p=31#comment-51978 Wow I remember Floyd always on the coner of Minnesota and Spernard waving infont of the Carrs or Skippers. As a child I admit I used to be scared of him. R.I.P. friend Wow I remember Floyd always on the coner of Minnesota and Spernard waving infont of the Carrs or Skippers. As a child I admit I used to be scared of him. R.I.P. friend

]]> Comment on RSS, Aight? by Matt Robin http://usabilityworks.org/2005/02/03/rss-aight/comment-page-1/#comment-51974 Matt Robin Sat, 15 May 2010 13:37:40 +0000 http://usabilityworks.org/2005/02/03/rss-aight/#comment-51974 Playa! ;) Playa! ;)

]]> Comment on Floyd is dead. Long live Floyd! — A Eulogy in Absentia by Moses &Anecia Kritz http://usabilityworks.org/2004/04/21/floyd-is-dead-long-live-floyd/comment-page-1/#comment-51949 Moses &Anecia Kritz Fri, 16 Apr 2010 02:09:11 +0000 http://usabilityworks.org/?p=31#comment-51949 Thank you,this is very moving. Thank you,this is very moving.

]]> Comment on Pulmonary Fibrosis by Injoe1990 http://usabilityworks.org/2005/12/08/pulmonary-fibrosis/comment-page-1/#comment-51929 Injoe1990 Fri, 19 Mar 2010 12:13:08 +0000 http://usabilityworks.org/?p=251#comment-51929 I was diagnosed with pulmonary fibrosis bout 2 years ago.. I am now 19 years old. help us to breath........... please pray for us.. thanks, -LRAC- I was diagnosed with pulmonary fibrosis bout 2 years ago.. I am now 19 years old.
help us to breath………..

please pray for us..
thanks,
-LRAC-

]]> Comment on Pulmonary Fibrosis by Jennifer Bulandr http://usabilityworks.org/2005/12/08/pulmonary-fibrosis/comment-page-1/#comment-51924 Jennifer Bulandr Tue, 02 Feb 2010 20:14:45 +0000 http://usabilityworks.org/?p=251#comment-51924 For information about pulmonary fibrosis please visit www.pulmonaryfibrosis.org website. Join us in finding a cure or treatment for this disease! For information about pulmonary fibrosis please visit http://www.pulmonaryfibrosis.org website. Join us in finding a cure or treatment for this disease!

]]> Comment on A Sagan by Any Other Name by Sagan Elizabeth http://usabilityworks.org/2004/05/15/a-sagan-by-any-other-name/comment-page-1/#comment-51923 Sagan Elizabeth Tue, 12 Jan 2010 18:09:23 +0000 http://usabilityworks.org/2004/05/a-sagan-by-any-other-name/#comment-51923 I too have the first name Sagan, and I too was named after Sagan Lewis from St. Elsewhere. I am slightly younger than the other Sagans who have posted as I will be turning 20 later this year. I have never ran into another Sagan, and I absolutely love the name as I have never met another Sagan yet, until I came across this site. It is really neat to see how many there are and yet know that our name is still so rare that we still hear comments like "I've never heard that name before." Thank you so much for the name. I too have the first name Sagan, and I too was named after Sagan Lewis from St. Elsewhere. I am slightly younger than the other Sagans who have posted as I will be turning 20 later this year. I have never ran into another Sagan, and I absolutely love the name as I have never met another Sagan yet, until I came across this site. It is really neat to see how many there are and yet know that our name is still so rare that we still hear comments like “I’ve never heard that name before.”
Thank you so much for the name.

]]> Comment on HCI Masters Degree — Where Can We Do the Distance Thing? by nick http://usabilityworks.org/2007/01/25/hci-masters-degree-where-can-we-do-the-distance-thing/comment-page-1/#comment-51921 nick Thu, 03 Dec 2009 03:56:22 +0000 http://usabilityworks.org/2007/01/25/hci-masters-degree-where-can-we-do-the-distance-thing/#comment-51921 Hey Ara, Did you join Depaul? I just got accepted there. I was wondering if you liked it or if anyone else here knows anything about the Depaul distance learning program. Thanks! Nick Hey Ara,

Did you join Depaul? I just got accepted there. I was wondering if you liked it or if anyone else here knows anything about the Depaul distance learning program. Thanks!

Nick

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